1st Day of 7th Grade

1st Day of 7th Grade Homeschool Pic. T actually got a jump start on his schoolwork last night but today is his official first day of school. This summer was the first time we’ve done an actual summer break instead of doing year round schooling. He enjoyed the break so much that he wants to stay on top of his schoolwork this year so he can continue to have summer breaks from now on. We are easing back in though because that’s what the docs have asked us to do after his hospitalization due to the seizure situation from his sodium deficiency.  We feel he’s pretty much back to normal but don’t wanna take any chances so we obey what the docs have said to do. 

#cherishingthemoments 

#7thgraderinthehouse 

#sogladwehomeschool

Yo-Yo Amazing🤩

T did a regular video then slo-mo video of a yo-yo 🪀 move he’s learned. 

Cary High Marching Band

It was the end of Marching Band Camp for my Nephew, Tristan, tonight at Cary High and they had a small show for the families of the students.  It was great. At the end the seniors took shaving cream and you’ll see in the videos how they ended camp…LOL! Wish I had remembered to bring my good camera but the cell pics/video will have to do.

Happy Birthday Popsie!

Since we can’t be with you today to celebrate with you we made you this video. Happy Birthday 🎉🎈🎂🎊!!!

Update and More

So today T was cleared by his eye doctor from the injury he got while in PICU.  He had gotten some of the paste from an EEG they did in his eye during one of his combative moments and it gave him a chemical burn. Today they said it was completely healed🙌🏼🙌🏼🙌🏼!  

We also have been dealing with an issue with a lump in his arm that also happened at the hospital. Over the past couple of days it turned into two lumps so we had his MD check him out. She asked T some questions and she knew immediately the condition he had and how he got it and said it would heal but it could take a month for it to heal completely. It happened from an IV he had in his left hand that they tried to give him meds through that was sluggish. When they tried to put meds through it it burned T really bad. That caused the condition he’s dealing with. The lumps are because the vein got burned by the meds and it’s now trying to heal from it. She told me the medical term for it but it’s something I can’t spell or pronounce…LOL! The reason she knew with such certainty exactly what it was is because she’s had it happen to herself before. She said, “It’s very painful.”  I knew that already because all T has done is complain about it since he came home. Nothing can be done for it. It eventually fixes itself and until then he can take ibuprofen for the pain. Yet again, God put the right doctor in the right place to know exactly what was going on with our son. Praise God!

Through it all this kid has been a trooper. I’m just so very thankful for the happy ending to all that he went through. 

And tonight I saw several posts from friends about another family who was dealing with a medical situation with their young son who lost him. My heart and prayers go out to this family. I don’t know them personally but my heart goes out to them. May God give them uncommon strength and comfort in the days, weeks, and months ahead as they deal with this loss. 

It’s not easy losing someone we love even when we know that they are in heaven with Jesus. Even though we know we will see them again one day. We still mourn because we miss them in the here and now. We especially mourn when it’s a kid becasue we never had a chance to see them grow up and have a life and family of their own. We mourn for the missed moments that never got to happen. We take comfort in knowing they are with Jesus though. In all the pain of loss we have a comfort that passes all understanding.  May that comfort envelope this family!  

Almost two weeks ago we could’ve lost T but we didn’t. We prayed for him and had prayer warriors praying for him as well. All I can say is, “But God…!”  God knows our beginning and our end. He knows every hair on our head. He knows the number of days we will be on this earth. I trust His timing in every area of my life and I’m ever so thankful for all the moments I get to have with those I love. I’m always cherishing the moments!  I pray you all do the same. Don’t let a day go by where you are not cherishing the time you have with your family and friends. We never know when our last moment with them will be.  

#alwayscherishthemoments #alwaysbethankful #alwayslivelaughandlove

Took this of T and me a day or so after his release from the hospital. 

They were having a stare down while playing cards…LOL!  They keep me laughing that’s for sure. 

Jeep Rubicon XL Lego Build

T built this today. It’s the Jeep Rubicon XL. It’s actually his dad’s build but T wanted something to do so his dad let him build it. The boy is so totally bored but he’s got to follow doctors orders and not do anything to overstimulate his brain or cause any extra pressure. Easy and steady for now but for someone who is used to working out everyday that’s so hard to do.

Sodium Level

We just got word that T’s sodium level is 144. The normal level is between 135-145. We were so excited to get this news today. He is well within normal levels now. Praise the Lord! He was so excited he had to FaceTime his Nan and Pop and let them know. 

One Week Home from Hospital

One week home from the hospital and T is more like his old self. His eye is looking really good. I’ve got to make an appointment with the eye doctor this week. His left arm is hurting him and it has a small bulge so we will get that checked out this week too. Wanna make sure he didn’t injure it during all the times he was combative and having to be held down. One things for certain he’s a fighter whether he’s awake or lethargic…LOL! He still has several weeks before he’ll be aloud to go back to training. With the brain trauma they wanna make sure it is healed completely before he reintroduces training and fighting back in. We even have to ease him into school because they don’t want to over stress his brain at all. That’s all I have for now though. He’s looking so good. 

Peds Floor

T is on the Peds floor now and out of ICU. T has been making up for having not had anything to eat for nearly 30 hours…LOL! 

When T woke up his left eye was hurting really bad. He kept rubbing it and saying it burns. While he was lethargic he kept itching and rubbing his head where the wires had been for the EEG. They have to use a paste to stick them to your head with. Some of that paste got in his eye and gave him a chemical burn. So now we are dealing with that issue🙄🤦🏻‍♀️.  I’m just glad we have our boy back!!!  They have been the best for all they’ve had to deal with. 

Here’s a pic showing the chemical burn:

Update

T was just able to push the nurses hands away with both feet. He was able to squeeze her hand and mine with his hands. They’ve bumped the sedation meds down by .2 overnight. He’s starting to sound more like himself but just very groggy. He keeps asking where he’s at and we keep telling him. When he gets to be more with it and less groggy he’ll be able to understand where he is and won’t ask that question over and over each time he wakes. He’s making progress even though it’s baby steps but I’ll take any progress we can get right now. When he gets more with it and doesn’t require as much constant care they’ll move him from PICU to the Peds area. And as they feel he’s strong enough they’ll probably let him go home. You can’t believe the incredibly huge relief I’ve been having as the night has went on. We’ve slept as T has slept and I’ve been up each time the nurse has come in which has been every couple of hours. 

Scot got me this neck pillow yesterday so I could sleep in the recliner. Scot’s been sleeping on the couch bed to get his sleep.